Care Coordinator

The ERN / Rare Disease Care Coordinator will provide front-line support for the ERN / rare disease service, with a focus on the ERN for Metabolic Diseases (MetaBERN). The post holder will have a central role in coordination of multidisciplinary rare disease care pathways, patient and family rare disease support, advocacy, data collection/analysis and education. In collaboration with the MDT and relevant stakeholders, the post holder will contribute to the delivery of a high quality and effective national rare disease service and will identify service quality improvements through a patient partnership approach. The Care Coordinator will collaborate with the National Care Coordinator at the National Rare Diseases Office.

Informal enquires to:

Doreen Steenson, Operations Manager - Acute Neurosciences (ANSRM) - dsteenson@mater.ie